Cystic Fibrosis ‘Rock-A-Thon’ held
by Debbie Rolen firstname.lastname@example.org
The tenth annual Rock-A-Thon fundraiser for cystic fibrosis was held outside of Wal-Mart at Fountain Place Mall at Logan. The purpose of the fundraiser was to raise money for the Cystic Fibrosis Foundation to aid new drug discovery technologies through research and ultimately find a cure. The total donations collected during the event was $6,175.
When the Cystic Fibrosis Foundation began in 1955, very few children with Cystic Fibrosis lived to attend elementary school. Today, because of contributions from people and organizations who support cystic fibrosis fundraisers, the median age of survival has increased into the upper thirties. Researchers are making a real difference aimed at finding a cure; yet, precious lives of infants, children and young adults continue to be lost to this dreaded disease.
Cystic Fibrosis is a genetic disease for which there is no cure. Approximately 30,000 infants, children and young adults in the United States have cystic fibrosis. It occurs when a baby inherits two copies of the defective cystic fibrosis gene — one from each parent. In West Virginia, every newborn is tested for cystic fibrosis before it leaves the hospital.
For more information about the fundraiser, contact Libby Mays at 304-792-7130 or 304-752-0556.
To learn more about the services and programs available for cystic fibrosis, call 1-800-FIGHT CF, or visit the website at www.cff.org.
Contributions area accepted anytime and can be made to the Cystic Fibrosis Foundation and sent to Libby Mays, P. O. Box 176, Logan WV 25601.
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