The 11th annual “Rock-A-Thon” fundraiser for Cystic Fibrosis (CF) is scheduled for Sat., Aug. 30, outside at Logan WalMart. The event is to raise money for the Cystic Fibrosis Foundation to aid in new drug discovery technologies through research and ultimately find cure.
When the Cystic Fibrosis Foundation was established in 1955, children with CF were not expected to live long enough to attend elementary school. Today, because of contributions from people and organizations who support Cystic Fibrosis fundraisers, and due in part to the CF
Foundation’s support of innovative research and care, the median age of survival has increased and many CFers are living into their 30s and 40s.
Approximately 30,000 children and adults in the United States have Cystic Fibrosis. It occurs when the baby inherits two copies of the defective CF gene — one from each parent causing the body to produce unusually thick, sticky mucus that clogs the airways and leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body to absorb nutrients to break down and digest food
Symptoms of CF vary and can be confused with frequent episodes of pneumonia or asthma. Major symptoms are salty-tasting skin, persistent coughing, wheezing or shortness of breath, excessive appetite but poor weight gain and greasy, bulky stools. The diagnostic test to detect CF is the “sweat test” which measures the amount of salt in the person’s sweat An abnormally high salt level indicates a positive diagnosis of CF. Clearing mucus from the lungs is the most important part of the daily treatment regimen which is done in the form of chest therapy by rigorous clapping on the person’s back and chest Other treatments include inhalation therapies, antibiotics to reduce lung infection and enzymes taken orally with every meal to aid in food digestion
Progress towards a cure has been made but the life of young people with CF is still being cut short.
Anyone wishing any further information regarding the fundraiser can contact Libby Mays at 304-752-0556.
To learn more about the services/programs available for Cystic Fibrosis, call 1-800-FIGHT CF or visit the CF web site at www.cff.org
Donations are accepted anytime and can be made to the Cystic Fibrosis Foundation.
Anyone wishing to make a donation can send it to Libby Mays, 17 Pigeon Roost Road, Chapmanville, WV 25508.